Description
This cooperative‑agreement funding opportunity supports two complementary research components aimed at improving long‑term health outcomes for individuals living with spina bifida. Component A funds 8‑11 awardees to collect high‑quality longitudinal data through the National Spina Bifida Patient Registry (NSBPR). Component B funds 6‑9 awardees to implement and evaluate the UMPIRE protocol, which focuses on urologic management and renal function preservation in young children with myelomeningocele. Recipients will analyze collected data, disseminate findings, and help refine clinical care practices. The program runs for three years, with an estimated total budget of $3 million and individual award amounts ranging from $100 k to $300 k per year.