Using Longitudinal Data to Characterize the Natural History of Fragile X Syndrome to Improve Services and Outcomes

This opportunity is a Notice of Funding Opportunity (NOFO) from the Centers for Disease Control and Prevention - ERA. The purpose of this NOFO is to contribute to the characterization of the population with fragile X syndrome (FXS) and to assess the impact of the condition on the health and quality of life of those affected across their lifespan. The NOFO will support two components: Component A, which aims to maintain the current FORWARD dataset and expand the age range covered by this dataset, and Component B, which will support a Data Coordinating Center to receive, process, and analyze data from patients, parents, clinicians, and laboratories. • The NOFO is open to current recipients funded under CDC-RFA-DD-15-003. • The estimated funding for this opportunity is $550,000. • The award ceiling is $350,000. • The award floor is $0. • The opportunity is expected to support two awards. • The project start date is estimated to be September 1, 2020.